Our Mission

The Rochester Ataxia Foundation (RAF) is committed to raising the dollars necessary to engage research communities in seeking a better understanding of causes, and ultimately, a cure for, inherited ataxia.

The Rochester Ataxia Foundation will continue to advocate for improved diagnosis, care and treatment for individuals in the Rochester area and in the northeast United States and will work to raise public awareness of inherited ataxia.

6 Days until our 10th Annual RAF Golf Tournament & Dinner!!!

Check out our Events page below to register

11:30 am Registration, Buffet Lunch & Range Balls

    12:30 Shot Gun Start

4:30 pm Cocktail

6:00 pm Dinner



Western NY Ataxia Support Group

Organizer - Jesse Diehl 585-315-1578 or jesse.diehl61@gmail.com



Meets once a month on the 3rd Wednesday 5:30 - 7 p.m.

The First Congregational Church

65 Church Street

Spencerport NY 14559
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Rochester Ataxia Foundation
P.O. Box 16560, Rochester, NY 14616


Copyright © 2019 RAF